A letter to your elected representative is a powerful tool. It helps policymakers understand the human impact of the laws they create.
A good letter tells a story of how a particular piece of legislation affects you. It includes personal anecdotes as well as facts about the law. It shows that you understand the issue, and want, in turn, to make your lawmaker understand how deeply this would affect you.
When writing a letter, a few things to keep in mind:
Be clear and concise. Try to keep the letter to one page.
Use personal information (you bleeding disorder; you medical costs, etc.)
Convey urgency, not anger
Below is a sample letter which you can use as a template to write to your Senator, governor, other elected official, or local newspaper. This letter highlights the issues in the bill that would have the biggest effect on the bleeding disorders community.
The bleeding disorder community has long been recognized as a strong voice in advocating for the needs of those affected by hemophilia and related bleeding disorders. NHF offers opportunities for members of bleeding disorders community to meet with their elected officials to tell their story:
Hemophilia of Iowa is not offering a Legislation Day for 2018, instead we plan to give the members of HOI all the tools necessarily to successfully advocate for their community.
Additionally, because advocacy is a year-long process, there are many other ways to participate in advocacy activities through NHF or your local chapter.
Advocacy can include:
If you are interested in becoming a better self- advocate or an advocate for the community at large, take a few moments to explore the tools and resources available to assist you in effectively communicating your story to legislators, government officials, payers, school or work personnel, media or others.
Remember YOU have an amazing story to tell and NO ONE can tell it better than you!