• hoi_director@hemophiliaofiowa.org
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2018 Annual Meeting

2018 Annual Meeting

Annual Education Weekend
August 24-25th 2018, Embassy Suites Des Moines, IA

Hemophilia
of Iowa is excited to invite you to the 2018 Annual Meeting! We work hard to
provide that there are sessions and activities for every member of your family!


Click here to ensure your hotel room by August 3rd

Introducing 2018s special guest speaker, Jeanne White!

December 1984 forever altered the lives of Jeanne White-Ginder and her family. Her son, Ryan, was diagnosed with AIDS, having contracted HIV during one of the many blood transfusions he received to treat his hemophilia. Until then, AIDS had been considered by the general public a “gay white disease,” and Ryan’s fight to lead a normal life and attend school ironically thrust him and Jeanne into the media spotlight. After Ryan passed away in 1990, Jeanne remained a tireless HIV/AIDS activist, testifying in support of the Ryan White HIV/AIDS Program, established just months after Ryan’s death and named in his memory. Jeanne speaks regularly to audiences nationwide about her experiences on the front lines of the AIDS epidemic in its early years, and the role that HIV/AIDS stigma plays in fueling the epidemic today.

PARENTS:

Parents, are you constantly trying to stay in the loop with social media and how to use it? Social media is constantly changing and it can be overwhelming to understand and keep up with. We will discuss and discover ways for the bleeding disorders community to engage online, safely network, exchange information, and share best practices.

Mental health and physical health are closely related. This presentation will discuss how pain, anxiety and depression can be intertwined. We will explore coping strategies, ways to work with a healthcare team, and lifestyle approaches that can improve well-being and put us back on track to enjoying life and loved ones.

 Discover what advocacy truly is and how you can craft your story into a message by using words that work. Advocacy is no more than a conversation that can happen in schools, at your place of work or even the grocery store.

 INFUSION ROOM:

Brought to you by your favorite HTC nurses, empowering parents and patients to take control of their bleeding disorder by understanding home infusions.

TEEN TRACK:

Teens with bleeding disorders and unaffected siblings can look forward to an interactive and engaging Teen Track. We’ll cover best practices for healthy and active lifestyles by discussing what foods are good for your joints during a Chop Challenge Friday night and discovering proper techniques while canoeing down Raccoon River. For freshmen in high school through the age of 20.

 

CHILDCARE:

For children under 15, Childcare includes meals (lunch and snacks) and, for children ages 6 and older, a field trip they’re sure to love. Children are supervised by a licensed and bonded childcare provider.

Introducing our special key note speaker, Jeanne White! (photo attached)

 

 

 

Cost is $25 per person or $35 per family, if only attending the Teen Track cost is $10

 

 

IMPORTANT DATES:

8/3/2018 Registration and Hotel Booking Deadline

8/6/2018 Childcare and Teen Track Registration Deadline


Register Today

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