MEMBERSHIP RUNS JANUARY 1 – DECEMBER 31, 2019
SINGLE, FAMILY, INDUSTRY REPRESENTATIVE, & FRIENDS OF HEMOPHILIA OF IOWA
Family includes residents in the same household with dependent children up to the age of 25. (Dependent children do not have to reside in the parent’s home if away at school or living on their own.) Relative would be a sister, brother, grandparent, aunt, uncle and/or cousin to the person who has a bleeding disorder.
Friends of Hemophilia of Iowa are people who do not have a relative with a bleeding disorder but are support people and friends of those who do have a bleeding disorder.
A brief history of Hemophilia of Iowa
The first recorded gathering of Iowan's affected by bleeding disorders occurred in 1986. This gathering was organized by Dr. Thomas Kisker, University of Iowa Hospitals & Clinics. Dr. Kisker united a group of parents with children that had bleeding disorders to determine how they could best support each other and their children navigate through the medical system and better understand challenges that accompany this diagnosis. This group later became known as Hemophilia of Iowa, Inc. (HOI). The organization quickly expanded to cover the entire state of Iowa. HOI's vision is to bring awareness, education, and advocacy to the bleeding disorder community. The first organized program held was the Hemophilia Summer Camp in 1987. Annually HOI provides programs and services that benefit the Iowa bleeding disorder community.
A bit of what we do.
Hemophilia of Iowa is grateful for the opportunity to provide events for the community.
All funds and proceeds received goes towards providing these opportunities to the Bleeding Disorder Community.
Through experiential learning we aim at to provide fun experiences that help empower teens 12-20 to be their best selves. We include educational components with the goals of building self confidence, positive attitudes, independence, treatment and management skills and much more!
1st Step a program for networking and education. These events are specifically planned for families with children that are newly diagnosed with a bleeding disorder, their parents and siblings.
One week of every summer Hemophilia of Iowa sponsors a week long overnight camp for kids affected by bleeding disorders.