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2018 Hemophilia Family Camp is now Open!

Family Camp is a time for networking & education for families with child aged 3-5 with a bleeding disorder and parents and siblings. Family camp is offered to provide a safe camping experience for your family so when your child turns 6 years old and its time for week long summer camp families are prepared and comfortable sending their child.

We also offer fun volunteer opportunities! HOI is in search of medical and non-medical volunteers who are willing to spend a day or two at camp. 


Learn more about registering

2018 Membership and Bleeding Disorder T-Shirt

 

 

 

 

        


Bleeding Disorder T-Shirt form


Membership Registration

While you’re at it check out the new Bleeding Disorder Awareness T-Shirt! This all inclusive shirt will raise awareness for the Bleeding Disorder Community and show that we are a family.

Bleeding Disorder T-Shirts are sponsored by HPC Specialty Pharmacy and BriovaRX 

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HPC Specialty

Fill out your 2018 membership form today! After filling out your 2018 Membership form be one of the first 75 individuals who like and share the photo above on the HOI Facebook page a chance to win a free airplane ride at the Bloody Brunch on March 18th


2018 Membership Page


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L.E.A.D. Program 

The Young Adults had a Blast at First Ever Gathering!

On March 10-11th the young adults of Iowa gathered for the first Teen Retreat! The group had a blast learning more about sharing their story and bonding with the bleeding disorder community.

What is the L.E.A.D. Program?
Leaders who Empower, Advocate and Develop

For all teens between the age of 13 to 20 or freshmen in high school to age 20, this event is all about YOU! Become a leader in the community by joining the L.E.A.D. Program. This program is designed all around the teens and gathering valuable life skills and leadership opportunities!

The affected individual does not have to be in the age range for their sibling to attend.

Scholarship Applications Due March 31st, 2018

Know of someone in the bleeding disorder community that is looking for scholarship opportunities? HOI can help with that! 


Scholarship Information


Advocacy from your Couch

Keep in the loop with what’s happening in the legislature and how it can affect you! 

This issue focuses on what the government shutdown was about and why it may affect you. Also check out why it is impotant that Iowa passes Copay Choice in legislation. If it is not passed patients may end up paying more out of pocket.

We challenge you to contact your local representative today to let them know why Copay Choice is so important. 


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Programs and Events

Learn more about the educational and fundriasing programs that Hemophilia of Iowa offers!


Mark Castenson, Board President

About HOI

Interested in what happens behind the scenes of HOI? Meet your board of directors and learn more about the organization!


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Get involved

Hemophilia of Iowa is always welcoming new members and volunteers to the community! Learn more about how your monetary and time donations help make a difference!

2018 HFA Symposium


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HFA’s annual meeting is going to be rockin’ Cleveland, Ohio, from April 26–29, 2018! Lucky for you registration has just opened, so get rollin’ and register for our largest event of the year! Symposium is an annual opportunity for members of the community to take advantage of educational opportunities, advocacy information, support, family friendly events, our exhibitor hall, and so much more!

Interested in attending and representing Hemophilia of Iowa? Contact Hanna Beary at h.beary@hemophiliaofiowa.org for more information on travel assistance

Hemophilia of Iowa’s mission:

“To provide education and support to individuals with a bleeding disorder and their families and friends.”

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