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Our Vision

HOI's vision is to bring awareness, education, and advocacy to the bleeding disorder community.


 
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CAMP REGISTRATION IS NOW LIVE

In order to attend Hemophilia and Bleeding Disorder Summer Camp you must be a 2019 member of Hemophilia of Iowa. Membership must be completed prior to the registration deadline to be eligible to attend camp. Camp IS PASSWORD PROTECTED. All 2019 members should have received an email with the camp password. If not, do not fear! Contact Hanna Beary to ensure your membership was completed and to receive the password. If you are not a 2019 member of Hemophilia of Iowa we encourage you to do so! You will receive the camp password in your membership confirmation email.

You can sign up for camp TODAY by clicking on the button below!

 
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2019 Member Form is Now Open

HOI membership brings you information, resources and access to the activities that are fun for the while family. Your family can join other families that make up our vibrant and growing community. By becoming a member of HOI you and your family will receive the latest news and updates within your community.


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Join HOI at our 2019 Events!

We are dedicated to providing the bleeding disorder community throughout the state of Iowa with various programs and services designed to enable participants to be productive members of their community.


2019 Bleeding Disorders Hill Day

For Rare Disease Day and the formal signing from Governor Kim Reynolds announcing March as Bleeding Disorder Awareness Month

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 Join us at the Capitol in Des Moines for Hemophilia of Iowa’s Bleeding Disorders Hill Day. As we celebrate Rare Disease Day this is a great time to share your personal story, thank your elected officials for their support, and continue to stress the importance of access to care for the bleeding disorders community! Hemophilia of Iowa members, friends and families are invited to attend.

 Although in Iowa we are not allowed schedule appointments with each attendee’s elected official, we WILL do our best to communicate with the elected officials that we WILL be present and are in need of their time. We will also witness a formal proclamation signing by Governor Kim Reynolds declaring March as Bleeding Disorder Awareness Month for Iowa for the second year in a row.


 
 

Hemophilia of Iowa presents

2019 Scholarship Program

Applications are now open! HOI is extremely blessed to have the opportunity to provide such great individuals of our community financial assistance for higher education! HOI will begin accepting applications January 1, 2019  and the application will close March 15th, 2018.

 
 

 

Our Programs

Hemophilia of Iowa has various programs to enrich and to continue encouraging those with a bleeding disorder and their family and friends

 

first steps

This is a time for networking and education for those with children that are similar in age to your child with a bleeding disorder. This event is  for families with first step aged children that have a bleeding disorder, their parents and siblings.

Travel grant

Hemophilia of Iowa is excited to offer the community an opportunity to attend Washington Days, the NHF Annual Meeting or the HFA Symposium. All great educational opportunities that can help your community!

Young adult program

This program is geared to build a community of young adults and teens who are interested in developing leadership skills, become more independent and empowered, develop a support system of peers, and of course, to have fun! 


 

January 2019

Without this summer camp program, my son would never have had the courage to stick someone or even be excited about sticking himself.

Quote Source / Read Full Article

 


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Board of Directors

The decorated Board of Directors bring different experiences to the board. We strive to continue to move forward in order to continue to best serve our community.

 

 

Get Involved

Information, advocacy and support for the bleeding disorders community are our main focus through partnering with the staff of the U of Iowa Hemophilia Treatment Center, industry, government and other resources.

Our goal is to assist anyone in Iowa affected with a blood coagulation disorder to become healthier and more self-sufficient.

 

Sign Up For a Program

Enroll in a program for education

Volunteer opportunities

Volunteer with Hemophilia of Iowa today!

Make a Donation

Make a donation for the future of HOI