Home

August Friday 24th-Saturday 25th at the Embassy Suites by Hilton 101 E Locust St, Des Moines, IA 50309

Register by August 3rd to ensure your hotel room

Hemophilia of Iowa is excited to invite you to the 2018 Annual Meeting! We work hard to provide that there are sessions and activities for every member of your family! 

NEW THIS YEAR!
INFUSION ROOM: Brought to you by your favorite HTC nurses, empowering parents and patients to take control of their bleeding disorder by understanding home infusions.
 
TEEN TRACK: Teens with bleeding disorders and unaffected siblings can look forward to an interactive and engaging Teen Track. We’ll cover best practices for healthy and active lifestyles by discussing what foods are good for your joints during a Chop Challenge Friday night and discovering proper techniques while canoeing down Raccoon River. For freshmen in high school through the age of 20.

Jeanne White and Her Story

Introducing our special key note speaker, Jeanne White!

December 1984 forever altered the lives of Jeanne White-Ginder and her family. Her son, Ryan, was diagnosed with AIDS, having contracted HIV during one of the many blood transfusions he received to treat his hemophilia. Until then, AIDS had been considered by the general public a “gay White disease,” and Ryan’s fight to lead a normal life and attend school ironically thrust him and Jeanne into the media spotlight. After Ryan passed away in 1990, Jeanne remained a tireless HIV/AIDS activist, testifying in support of the Ryan White HIV/AIDS Program, established just months after Ryan’s death and named in his memory. Jeanne speaks regularly to audiences nationwide about her experiences on the front lines of the AIDS epidemic
in its early years, and the role that HIV/AIDS stigma plays in fueling the epidemic today.

Join us Saturday 8/25 for lunch to hear Ryan White’s story told by his mother.

Family Camp

Family Camp is a time for networking & education for families with child aged 3-5 with a bleeding disorder and parents and siblings. Family camp is offered to provide a safe camping experience for your family so when your child turns 6 years old and its time for week long summer camp families are prepared and comfortable sending their child.

 

2018 HOI Membership

Bleeding Disorder Awareness T-Shirt

2018 will bring many great things, including NO MORE REGISTRATION FEES! Instead Hemophilia of Iowa is selling Bleeding Disorder Awareness T-Shirts to raise awareness in Iowa! T-Shirts are sponsored by HPC Specialty and BriovaRX


overnight group photo

L.E.A.D. Program 

The Young Adults had a Blast at First Ever Gathering!

On March 10-11th the young adults of Iowa gathered for the first Teen Retreat! The group had a blast learning more about sharing their story and bonding with the bleeding disorder community.

What is the L.E.A.D. Program?
Leaders who Empower, Advocate and Develop

For all teens between the age of 13 to 20 or freshmen in high school to age 20, this event is all about YOU! Become a leader in the community by joining the L.E.A.D. Program. This program is designed all around the teens and gathering valuable life skills and leadership opportunities!

The affected individual does not have to be in the age range for their sibling to attend.

 

Advocacy from your Couch

Keep in the loop with what’s happening in the legislature and how it can affect you! 

This issue focuses on what the government shutdown was about and why it may affect you. Also check out why it is impotant that Iowa passes Copay Choice in legislation. If it is not passed patients may end up paying more out of pocket.

We challenge you to contact your local representative today to let them know why Copay Choice is so important. 

Get involved

Hemophilia of Iowa is always welcoming new members and volunteers to the community! Learn more about how your monetary and time donations help make a difference!

2018 HFA Symposium


sympo_hero_VALENTINES_TEST

HFA’s annual meeting is going to be rockin’ Cleveland, Ohio, from April 26–29, 2018! Lucky for you registration has just opened, so get rollin’ and register for our largest event of the year! Symposium is an annual opportunity for members of the community to take advantage of educational opportunities, advocacy information, support, family friendly events, our exhibitor hall, and so much more!

Interested in attending and representing Hemophilia of Iowa? Contact Hanna Beary at h.beary@hemophiliaofiowa.org for more information on travel assistance

Hemophilia of Iowa’s mission:

“To provide education and support to individuals with a bleeding disorder and their families and friends.”